HOW DID IT COME TO THIS?

It took five years and numerous MRIs, EMGs, neurologists and an assortment of unpleasant test to finally get a diagnosis.

Corticobasal Syndrome (CBS) is in the family of Frontotemporal Degeneration (FTD).  CBS mostly effects the movement of the individual.   Patients may experience palsy and a decline in motor skills, starting on one side of the body eventually affecting the other side. Other signs include speech difficulties, not being able to make an arm or leg move on command, tripping or falling, blah, blah, blah.

What it really means is the cells of my brain are dying a very slow death and there’s nothing to be done about it. There is no cure…

One Reply to “HOW DID IT COME TO THIS?”

  1. My Friend, My love, my dream, my hero! We shall dance this life to its fullness! Let me take you by the hand and the two of us shall get through this on a birds wing. I smile with you, I laugh with you, I dream with you, I walk along side you I shall cover the puddle of mud with me for to give you a steady path. You are my HERO!

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